Patients4Data Campaign

Graham Silk
 
Patients4Data is a campaign to promote the power of patient data to drive the NHS toward more effective and better joined-up care, and to deliver treatments that save and extend lives.
 
Too often, care is fragmented and disjointed. Care.Data is a new NHS programme that will collect and mine data from patient medical records to uncover pockets of excellent care from which others can learn, and reveal incidents of sub-par care which must be addressed. Care.Data can also be used to better inform the NHS about how to allocate its resources. In addition, medical researchers seeking new treatments and cures for diseases can apply to use our data in their work.
 
Surveys have found that most of us are willing to have our health data analysed, as long as our privacy is protected. Patients4Data is campaigning for policies and legislation that protect patient privacy. We are pressing Government and the NHS for: 
  • More transparency and better communications with the public and within the NHS about Care.Data
  • Protection of our privacy and anonymity with the use of minimal personal identifiers when data is extracted from our medical records
  • Strict confidentiality policies, tough punishments for anyone who violates them, along with vigilant monitoring and enforcement

Join the Patients4Data Campaign

Please sign up to join the campaign, receive bulletins, register a message of support, and share your story.

George Freeman MP
 

Important legislative action has helped strengthen protection of patient data. Further work is underway.

11 June 2014.  PRIVATE MEMBERS BILL BALLOT: Having backed introduction of a 10 Minute Rule Bill by our Parliamentary Founder, George Freeman MP, Patients4Data is delighted to report that Ministers have agreed to adopt two provisions in a Government 'hand-out' Bill that could make a major impact on patients across the NHS and Care sectors. Read more.

 

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